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{uZa}Natasha_Fatale
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Post subject: Re: The Real Battle Begins: I Have Lymphoma  Posted: Wed Mar 19, 2014 4:39 pm |
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Joined: Tue Feb 17, 2009 2:03 am
Posts: 2345
Location: Boston, Massachusetts
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Praying for you ! Waiting is difficult but just take one moment at a time!God Bless!
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{uZa}Innocent
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Wed Mar 19, 2014 5:12 pm |
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| Mucho Posto! |
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Joined: Sun Feb 22, 2009 6:20 pm
Posts: 531
Location: New Orleans, Louisiana, USA
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Thanks Natasha! Just reposting this so it is on the new page... The Good, The Bad, and the Ugly.... Good News, Bad News, and More Waiting.... This is taken from my blog: http://craig.handsfreehelp.com/03132014We get to see Dr. Safah and the test results. She is happy with what the neck shows as it shows nothing at all. The chest has a few minor spots in it, but since the SUV is below 3 she is not really worried about them at all. However what does alarm her is that I have new spots showing up on this scan that is in my abdomen. One has an high uptake of 9.4, the other two are 4.7 and 4.5. She is not sure what to think of this, this could be bad if it is new disease spots spreading to my Abdomen. I tell her that I did have the shingles about 3 weeks ago, and that I came in and saw the PA for it, however that information never did get relayed to her. Dr. Safah said that if she knew about the shingles, she would had put off the scan for another month. She said it can possibly be the Shingles causing the lymph nodes in the area to increase uptake and size as it fights the Shingles and is draining everything from the Shingles infection, however, she cannot say for sure that it is the Shingles causing it. We will schedule another PET/CT scan in another 3 months to see if there is any change in the size and uptake of these lymphnodes. Everyone leaves the room and Dr. Safah wants to look at the area in which my shingles are. They are well scabbed over at this point and mostly gone away, but you can still see the evidence of where they have been, all over the left but cheek, upper inner leg/groin area. After seeing how widespread the shingles was, she feels even a little better, but can't rule anything out, and will just have to wait and see what happens in 3 months. If they are still there, then we are talking about doing a biopsy to find out exactly what it is, but she doesn't want to get into those details yet because it could hopefully be nothing, but no one knows we will just have to continue to wait and see... Test Results -> http://craig.handsfreehelp.com/biopsy-resultsSo the journey continues....
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{uZa}Studdog
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Wed Mar 19, 2014 7:10 pm |
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Joined: Thu Feb 19, 2009 11:12 pm
Posts: 891
Location: Indiana, USA
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Most of that sounds like good news.  As for the questionable spots, we will keep praying and anxiously waiting to hear the next scan results. Thank you Lord for giving his body and mind the strength to overcome and the doctors the education and skills to get him this far. Please continue to give the doctors wisdom and innocent the strength to endure, and above all give his body the strength it needs to heal! Amen!
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{uZa}Innocent
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Wed Mar 19, 2014 7:22 pm |
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| Mucho Posto! |
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Joined: Sun Feb 22, 2009 6:20 pm
Posts: 531
Location: New Orleans, Louisiana, USA
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AMEN!!!!
I haven't given up yet, and I ain't about to start giving up now! The fight will continue if it must! We shall see!
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Lt.Blinky
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Sat Mar 22, 2014 11:43 am |
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Joined: Mon Feb 23, 2009 5:29 pm
Posts: 73
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I wish you the best in your fight. I haven't been around for awhile since the gaming community is changing. I keep thinking about you. Good luck my friend.
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{uZa}Innocent
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Mon Mar 24, 2014 10:12 am |
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| Mucho Posto! |
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Joined: Sun Feb 22, 2009 6:20 pm
Posts: 531
Location: New Orleans, Louisiana, USA
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Thanks Blinky! It's still great to see you around from time to time especially on Sat nights...
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{uZa}Innocent
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Fri Apr 18, 2014 3:21 pm |
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| Mucho Posto! |
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Joined: Sun Feb 22, 2009 6:20 pm
Posts: 531
Location: New Orleans, Louisiana, USA
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{uZa}Studdog
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Fri Apr 18, 2014 7:10 pm |
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Joined: Thu Feb 19, 2009 11:12 pm
Posts: 891
Location: Indiana, USA
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Great Video! Very Inspirational!
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{uZa}ultra
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Sat Apr 19, 2014 8:09 am |
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Joined: Thu Feb 26, 2009 5:01 pm
Posts: 412
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_________________ 
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{uZa}Innocent
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Sat Apr 19, 2014 12:59 pm |
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| Mucho Posto! |
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Joined: Sun Feb 22, 2009 6:20 pm
Posts: 531
Location: New Orleans, Louisiana, USA
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Thank you Thank you! Great walking the race today! Attachment: More images from the race on my blog... At the house after the race: Attachment: Attachment:
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{uZa}mattbaker
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Sat Apr 19, 2014 7:56 pm |
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| Mucho Posto! |
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Joined: Thu Feb 19, 2009 10:24 pm
Posts: 835
Location: Sarasota, FL
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You are the man!  _________________  
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{uZa}Innocent
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Wed Apr 23, 2014 2:06 pm |
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| Mucho Posto! |
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Joined: Sun Feb 22, 2009 6:20 pm
Posts: 531
Location: New Orleans, Louisiana, USA
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{uZa}Innocent
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Wed Jan 14, 2015 7:02 pm |
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| Mucho Posto! |
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Joined: Sun Feb 22, 2009 6:20 pm
Posts: 531
Location: New Orleans, Louisiana, USA
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Waiting for my next scan in March. Hopefully the spots in my abdomen have disappeared, but we shall see!
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{uZa}Innocent
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Sat Mar 21, 2015 6:42 pm |
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| Mucho Posto! |
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Joined: Sun Feb 22, 2009 6:20 pm
Posts: 531
Location: New Orleans, Louisiana, USA
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BLAH... http://craig.handsfreehelp.com/03192015 ... om-scan-1003/19/2014: PET Scan Results from 03/18/2015 - Scan #10: I meet with Dr. Safah. She is not happy with the results at all. She said that the Lymphoma appears to have relapsed. There are new small spots showing, and the abdomen where the Shingles were, has only continue to grow bigger with an SUV over 10. She said it is time to start preparing for Transplant #2. This time it will be an allogenic transplant, rather than an autologous transplant. This means that the stem cells will come from someone else. My sisters will be worked up to see if they are a match, if they are, they will need to go through everything that I went through last time, in preparation and harvesting of their stem cells, the constant shots to increase the number of stemcells in the blood stream, and then the pheresis process to collect the stem cells pulling blood from them pulling out just the stem cells and then putting the blood back into their body. Anyways she orders bloodwork, and swabs. I will be meeting with a Dr. Weaver on Tuesday to discuss how the biopsy will be done to obtain access to the lymphnodes in question. It will most probably happen via Mediastinoscopy. Once the biopsy is in and if it confirms the progression of the disease, then brentuximab for 3 or so cycles, then Transplant #2. Transplant #2 includes additional risk, as now I am getting someone elses's cells. Graft-versus-host disease is the main concern as the transplanted cells may start to attack me, which is wanted to cure the cancer, but not completely as then greater life threatening risk come into play. Dr. Safah assures me this can usually be kept in control with blood test and open communication about anything and everything with me and her. The fun has just begun. Round 2
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{uZa}mattbaker
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Post subject: Re: The Real Battle Begins: I Have Lymphoma Posted: Sat Mar 21, 2015 7:37 pm |
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| Mucho Posto! |
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Joined: Thu Feb 19, 2009 10:24 pm
Posts: 835
Location: Sarasota, FL
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Keep up the good fight my friend. God be with you.
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